To many of you Cinco de Mayo refers to the Commemoration of the Mexican Army's 1862 victory over the French in the Battle of Puebla in the Franco-Mexican War.
To me it does too, however I have a huge celebration as well. On this day in 2005 (yes o5-05-05) I received my third chance at a new life. I received a kidney transplant.
I am to this day amazed at how little we think of our kidneys, and how they bring everything into working order in these complex machines we call our bodies. I knew I was anemic and had high blood pressure because of the the insufficiency of my kidneys. But to see the day after transplant my blood pressure reading drop to a whopping 95/64 with no meds from barely controlled 120/92 (on a good day) while taking 2 different medications is phenomenal.. I mean how can this small organ, smaller than my fist accomplish such a huge feat?
I still have my 3 page list of foods I had to avoid. No they were not the fast foods we hear about today. These were ones I loved: bananas, oranges, broccoli, dairy, etc. I used to joke that anything that was naturally good and colorful was b-a-d for me. I held out to the very last with my Diet Coke. Can't have caramel colored soft drinks either, too much phosphorus. I only drank them when I had an upset stomach. That too was nixed in the end.
I no longer have my "Popeye" arm, where the fistula was placed. It was removed exactly 5 years to the day after it was put in. It had formed a clot due to non-use. I smiled to think non-use. Wow, first time I could actually say I had a surgical procedure done as a pre-cautionary that was exactly that! Now all that remains is a long scar from under my arm-pit to just below my wrist. A reminder to take care of that lone kidney I received from Suzie my sweet donor. And the wonderful Donor Dad who agreed to let me receive it.
Today is melancholy and yet happy. Today is my celebration, while Donor Dad is remembering his little girl he lost on May 3, 2005 her birthday. You too can honor my donor Suzie, please visit my page and see her picture and read a little about her too. We have alot of similarities in our lives.
Are you an Organ Donor ? The life you could save might be one you love.. ♥
Recycle yourself.. Become an Organ and Tissue Donor
Hopefully this blog will be the culmination of all my years attempting to write a book about surviving an organ transplant. I've survived 3 organ transplants & have a pacemaker. Life is GOOD! I am truly BLESSED! Years ago I titled my book "At the end of my rope" for 2 reasons. 1.Physically: Being tethered to oxygen for 20+ years. Hence, the rope. 2. Psychologically: There are times when I literally feel At the end of my rope.
Showing posts with label celebrate. Show all posts
Showing posts with label celebrate. Show all posts
Saturday, May 5, 2012
Tuesday, January 12, 2010
Birthdays..How many do you have?
Many of you may think this a strange question. As for me, not at all. As I sit here with an excruciatingly painful toothache I've pondered this question.
On January 1st of this year a friend came by to celebrate her 50th birthday with us. I grilled chicken outside with shrimp scampi as an appetizer. And yes, we were able to grill outside on our one warm day before the unbelieveable cold hit Florida. As a joke I made a banner that read "Happy 21st Anniversary of your 29th Birthday". As we age we seem to try and forget the most important day of our lives. In fact it is really the only day that matters, for without it we would cease to exist.
As for me, I celebrate 5 birthdays. Yes my biological birthday is very important, but so are my transplant birthdays of which there are 3, plus my donor Susie (the only one I know). Many prefer to call their transplant birthday their anniversary, which has little logic for me. After all wasn't I given the Gift of Life?
If not for those transplants I would not be alive writing this today. Those who've had an organ transplant, know the emotions that go hand in hand with being a recipient. This Gift of Life can turn the hardest person into emotional mush. I can say this with clarity, because I was afraid of nothing before my first transplant. If my car broke down on a dark road, I'd walk home (this was before cell phones). Now, no way would I do this and so foolishly run the risk of my donor families hearing I took this chance with what I was given.
I remember a newspaper article that ws done on me in 1991 post transplant. In this article I stated I intended to enjoy each and every wrinkle and grey hair I get. So far so good. I' getting them. I'm tolerating them. I'm not doing anything about them. I will age gracefully with all my scars, wrinkles and grey hair completely intact.
Now that this is written I can decide which will be more excruciating. The toothache or the cost of the antibiotics to make it go away.. Either way I will feel the pain, believe me.
By the way... My friend dropped me a thank you card for her celebratory dinner. She thanked me for making her "29th Anniversary of her 21st Birthday" so much fun.. Guess she wanted to be younger still
On January 1st of this year a friend came by to celebrate her 50th birthday with us. I grilled chicken outside with shrimp scampi as an appetizer. And yes, we were able to grill outside on our one warm day before the unbelieveable cold hit Florida. As a joke I made a banner that read "Happy 21st Anniversary of your 29th Birthday". As we age we seem to try and forget the most important day of our lives. In fact it is really the only day that matters, for without it we would cease to exist.
As for me, I celebrate 5 birthdays. Yes my biological birthday is very important, but so are my transplant birthdays of which there are 3, plus my donor Susie (the only one I know). Many prefer to call their transplant birthday their anniversary, which has little logic for me. After all wasn't I given the Gift of Life?
If not for those transplants I would not be alive writing this today. Those who've had an organ transplant, know the emotions that go hand in hand with being a recipient. This Gift of Life can turn the hardest person into emotional mush. I can say this with clarity, because I was afraid of nothing before my first transplant. If my car broke down on a dark road, I'd walk home (this was before cell phones). Now, no way would I do this and so foolishly run the risk of my donor families hearing I took this chance with what I was given.
I remember a newspaper article that ws done on me in 1991 post transplant. In this article I stated I intended to enjoy each and every wrinkle and grey hair I get. So far so good. I' getting them. I'm tolerating them. I'm not doing anything about them. I will age gracefully with all my scars, wrinkles and grey hair completely intact.
Now that this is written I can decide which will be more excruciating. The toothache or the cost of the antibiotics to make it go away.. Either way I will feel the pain, believe me.
By the way... My friend dropped me a thank you card for her celebratory dinner. She thanked me for making her "29th Anniversary of her 21st Birthday" so much fun.. Guess she wanted to be younger still
Saturday, October 24, 2009
Surprises our spouses do.
I got a phone call at 7:30AM Wednesday morning from Eric of the Herald Tribune.
My wonderful husband called and told them my story and how I'd be celebrating a half century on Sunday.
We set up an interivew time of 10:00. OMG!!! I taught class Tuesday night , the house was a wreck, and I was just making breakfast.
I finished breakfast, did dishes, swept and mopped floors, showered, and walked the boys. I was just walking from the back yard when he arrived at 10:00. Talk about a whirlwind.
This is one of the best weekends of my life. Friday I celebrate 18 years with the first lung transplant and Sunday I flash forward to the big 5-0..
Yes I'm damned proud of each and every grey hair and wrinkle. I've earned them many times over!
Below is the article from the Trib..
Have a great day
Ernst: One living reason to donate your organs
By Eric Ernst
Published: Friday, October 23, 2009 at 1:00 a.m.
Last Modified: Thursday, October 22, 2009 at 6:26 p.m.
When she was 18 and undergoing a Navy physical, Bette Luksha-Gammell got the shock of her life.
"You'll never have children, and I'm surprised you're still walking," a doctor said. He later told her parents she probably wouldn't live past 20.
Unknown to her, Gammell had pulmonary hypertension, and her lungs and parts of her heart were three times normal size.
Following that news, a gradual decline left Gammell hooked to an oxygen tank for too much of her days.
Eighteen years ago, doctors transplanted two lungs into Gammell and sewed up a hole in her heart. In 2000, after her body rejected those organs, she received a single lung transplant in 2002. Then, about four years ago, she received a transplanted kidney after hers was damaged by the medicines she took for her lungs.
She now lives in North Port with her husband, Larry. On Sunday, she'll celebrate her 50th birthday.
Gammell may have lived a life of struggle and pain, but she doesn't ask, "Why me?"
"Never question God," she says. "You might not like the answer."
Instead of wallowing in self-pity, Gammell adjusted her goals and went to work for Disney cruise lines and as a baggage handler (no kidding) for Continental Airlines.
"I'm one of those people, I have to be doing something. I can't sit at home and collect a check every month," she says. "I'd love to be back at work, but I know the risk I take."
Gammell settles for teaching a wire jewelry class at the Cultural Center of Charlotte County.
She's also an advocate and ambassador for organ transplants. At Disney, she started a support group called Second Chance. She records her daily struggles at www.survivinganorgantransplant.blogspot.com. She writes letters with suggestions for Medicare reform.
And she has traveled across the country to talk with potential recipients filled with doubts, fears and conflicting emotions.
At 9 p.m. Sundays, she watches a new CBS television series, "Three Rivers," which follows the lives of organ donors, recipients and surgeons at a fictitious hospital in Pittsburgh.
Gammell calls the show the first national platform for organ donations.
"It certainly starts a conversation," says Jennifer Krause, public affairs manager for LifeLink Foundation.
The foundation, which arranges organ donations from Tampa Bay through Fort Myers, reported 584 transplants in its coverage area last year. Another 437 donors provided tissue for such uses as bone grafts and heart valves.
Gammell sees donors as the real heroes. "I try to do something, each day, to honor donor families," she says. "At the most grief-filled time of their lives, they gave up someone they loved to give life to someone that someone else loves."
To recipients and donors, she offers, by her own example, a simple creed: "You have all these issues, but you have to stay positive. Being positive keeps you alive, whether you've had a transplant or you're healthy."
To become an organ donor, register online at www.donatelifeflorida.org.
Eric Ernst's column runs Wednesdays, Fridays and Sundays. Contact him at eric.ernst@heraldtribune
.com or (941) 486-3073.
My wonderful husband called and told them my story and how I'd be celebrating a half century on Sunday.
We set up an interivew time of 10:00. OMG!!! I taught class Tuesday night , the house was a wreck, and I was just making breakfast.
I finished breakfast, did dishes, swept and mopped floors, showered, and walked the boys. I was just walking from the back yard when he arrived at 10:00. Talk about a whirlwind.
This is one of the best weekends of my life. Friday I celebrate 18 years with the first lung transplant and Sunday I flash forward to the big 5-0..
Yes I'm damned proud of each and every grey hair and wrinkle. I've earned them many times over!
Below is the article from the Trib..
Have a great day
Ernst: One living reason to donate your organs
By Eric Ernst
Published: Friday, October 23, 2009 at 1:00 a.m.
Last Modified: Thursday, October 22, 2009 at 6:26 p.m.
When she was 18 and undergoing a Navy physical, Bette Luksha-Gammell got the shock of her life.
"You'll never have children, and I'm surprised you're still walking," a doctor said. He later told her parents she probably wouldn't live past 20.
Unknown to her, Gammell had pulmonary hypertension, and her lungs and parts of her heart were three times normal size.
Following that news, a gradual decline left Gammell hooked to an oxygen tank for too much of her days.
Eighteen years ago, doctors transplanted two lungs into Gammell and sewed up a hole in her heart. In 2000, after her body rejected those organs, she received a single lung transplant in 2002. Then, about four years ago, she received a transplanted kidney after hers was damaged by the medicines she took for her lungs.
She now lives in North Port with her husband, Larry. On Sunday, she'll celebrate her 50th birthday.
Gammell may have lived a life of struggle and pain, but she doesn't ask, "Why me?"
"Never question God," she says. "You might not like the answer."
Instead of wallowing in self-pity, Gammell adjusted her goals and went to work for Disney cruise lines and as a baggage handler (no kidding) for Continental Airlines.
"I'm one of those people, I have to be doing something. I can't sit at home and collect a check every month," she says. "I'd love to be back at work, but I know the risk I take."
Gammell settles for teaching a wire jewelry class at the Cultural Center of Charlotte County.
She's also an advocate and ambassador for organ transplants. At Disney, she started a support group called Second Chance. She records her daily struggles at www.survivinganorgantransplant.blogspot.com. She writes letters with suggestions for Medicare reform.
And she has traveled across the country to talk with potential recipients filled with doubts, fears and conflicting emotions.
At 9 p.m. Sundays, she watches a new CBS television series, "Three Rivers," which follows the lives of organ donors, recipients and surgeons at a fictitious hospital in Pittsburgh.
Gammell calls the show the first national platform for organ donations.
"It certainly starts a conversation," says Jennifer Krause, public affairs manager for LifeLink Foundation.
The foundation, which arranges organ donations from Tampa Bay through Fort Myers, reported 584 transplants in its coverage area last year. Another 437 donors provided tissue for such uses as bone grafts and heart valves.
Gammell sees donors as the real heroes. "I try to do something, each day, to honor donor families," she says. "At the most grief-filled time of their lives, they gave up someone they loved to give life to someone that someone else loves."
To recipients and donors, she offers, by her own example, a simple creed: "You have all these issues, but you have to stay positive. Being positive keeps you alive, whether you've had a transplant or you're healthy."
To become an organ donor, register online at www.donatelifeflorida.org.
Eric Ernst's column runs Wednesdays, Fridays and Sundays. Contact him at eric.ernst@heraldtribune
.com or (941) 486-3073.
Saturday, September 26, 2009
Silence is golden
I realized this morning I've been lax on my updates.
I plan to change this now. I try to remind myself to sit down and make an entry each day, but get so busy.
First off, our computer is slower than cold molasses running uphill in January! A wonderful phrase my Mom used to say to me on school mornings.. Wow, how we become our parents over time.
Silence from a recipient or a candidate can mean one of two things. They are doing great, or they are doing terribly. One always wonders if they should call and find out, but human nature hates bad news. I've heard this many times over my lifetime. Take it from me, JUST CALL. Many times, especially with lung problems, it's easier to answer a phone call than to try and make one.
Physchologically it seems so energy consuming when you can't breathe. Plus the positive side is it will make that persons day.
My mom used to answer all my calls and if I could talk I would, if not well she is the bestest secretary in the universe. Nobody gets past Mom.
My last few weeks have been busier than usual. Clinic visits... Yeah good news... Now if I can keep it that way. I finally had students sign up for classes, and have been preparing for them and ordering suplies. Trying desperately to get my blood sugar under control.
Yes I am a diabetic. Mainly caused by Prednisone and Prograf. But I have to take the meds so I deal with the diabetes. I am a control freak about my blood sugar. This is one area of my health I can control and not have to leave in the hands of others. Being a recipient there are many facets of our health we cannot control, so when there is something I can control: I prefer to. My cholesterol is another are I can take control of.
Will post more soon. If you're a candidate waiting for a transplant- hang in there -it really does get better.
If your a recipient- get out there and enjoy the chance you've been given!
I plan to change this now. I try to remind myself to sit down and make an entry each day, but get so busy.
First off, our computer is slower than cold molasses running uphill in January! A wonderful phrase my Mom used to say to me on school mornings.. Wow, how we become our parents over time.
Silence from a recipient or a candidate can mean one of two things. They are doing great, or they are doing terribly. One always wonders if they should call and find out, but human nature hates bad news. I've heard this many times over my lifetime. Take it from me, JUST CALL. Many times, especially with lung problems, it's easier to answer a phone call than to try and make one.
Physchologically it seems so energy consuming when you can't breathe. Plus the positive side is it will make that persons day.
My mom used to answer all my calls and if I could talk I would, if not well she is the bestest secretary in the universe. Nobody gets past Mom.
My last few weeks have been busier than usual. Clinic visits... Yeah good news... Now if I can keep it that way. I finally had students sign up for classes, and have been preparing for them and ordering suplies. Trying desperately to get my blood sugar under control.
Yes I am a diabetic. Mainly caused by Prednisone and Prograf. But I have to take the meds so I deal with the diabetes. I am a control freak about my blood sugar. This is one area of my health I can control and not have to leave in the hands of others. Being a recipient there are many facets of our health we cannot control, so when there is something I can control: I prefer to. My cholesterol is another are I can take control of.
Will post more soon. If you're a candidate waiting for a transplant- hang in there -it really does get better.
If your a recipient- get out there and enjoy the chance you've been given!
Monday, July 27, 2009
Remembering Daddy
I've been absent from blogging for the past few days due to severe thunderstorms, but mainly because I was attempting to finish designing a Christmas ornament or Celebration.
My daddy passed away in 2005. Each year the funeral home holds a celebration on life around Christmas with each family placing an ornament on the tree in remembrance. Each year a new ornament is added along with ornaments from previous years.
This year is my turn to make the ornament.
This has taken much thought, mainly because :
1. I was Daddy's girl
2. I miss him more each and every day.
3. I wanted to honor him in the best way I knew how.
Here is the ornament I was finally able to finish....after much crying each time I tried to work on it.
Inside the card reads:
His favorite color-
Like his smiling eyes is blue
His heart-
Made of pure gold
His Faith- Unshakable
He placed everything in God's hands
His family-
Fragile and precious , like the finest crystal
The work on this piece- imperfect
Just like his "baby girl"
Loving husband, son, brother, uncle, grandpa, and even
a great...BUT
The most wonderful Daddy in the world
God truly broke the mold when he created you.
You are missed more with each passing day.
We Love you.
Just a reminder we all have to deal with difficult times. My daddy was there with me during my first 2 organ transplants. He was too ill to be with me for my kidney transplant. I made it through thoughts of previous transplants and him being with me, laughing. When I was discharged from the hospital to go home, he was admitted ( in a different city). I stressed if I would get to see him before he died and finally decided they could have my kidney-I HAD to see daddy again. He'd given me so much my entire life. I did see him in the nursing home a few weeks post transplant, he didn't know me. He died peacefuly in his sleep later that night. Immediately following his death I celebrated his life while others mourned his passing. My daddy was now free of hospitals, medicines, and being weak. Just as I've wanted to be my entire life. He was now whole again, enjoying that pair of wings he'd earned. Now is when I miss him, I mourn him, and I cry each time I think of his smiling face. His strength lives in me, I can survive. But oh how I wish I could have a daddy smile and hug.....
The story about "Pennies from heaven" is true. Each time I see a coin lying on the ground. I pick it up. Look to the clouds and say" Hi Daddy, I love you too."
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