I have been regularly berating myself for not posting, however once again why post if it's negative. I've been in that mood of "just nothing to say" for awhile now. The day to day struggle can wear a person down, and reminding myself to just get up and do it, doesn't always work. The mind is a powerful thing when it does not want to budge.
After discovering I was experiencing every side effect from long term use of Colistin, I have been changed to a different inhaled antibiotic. I am now using Amikacin, and it was amazing the first 3 weeks ! I had no cough, I was sleeping ALL night and my energy returned. Sadly so did an excruciating earache. Not just the ear, this extended all the way down my neck - ear canal- type of ache. Nothing worked. I then discovered in rare circumstances it can cause hearing loss....
Hmmmm choose between hearing or having my lungs.. Difficult choice huh? I stopped the Amikacin for a week,, and the cough returned with a vengeance. Yes , even to coughing so voraciously I lost my breakfast in the mornings. We decided to try once a day and see if kept the infection at bay. It did.. Well until December, when the nebulizer paralyzed my vocal cords... Yes ... completely.. I had no .. NO voice.. and it was painful to try and talk.
Eleven days in the Florida Keys in relative quiet. I guess my husband handled it quite well ;)
It was still the best and warmest Christmas to date. We played with a family of Manatee that were residents in the marina, and basically enjoyed the sunshine. My neice and her family came to visit for a day, being stationed in Key West, made Christmas away from family, better because there was family. Went into Key West for a day and Ozzi discovered the famous Key West Roosters ! We tried to visit again and after finding NO parking chose to go back to the campground.. Money saved-right ?
Ten days on Cipro for Diverticulitis caused me to once again stop the Amikacin. I had severe Vertigo and didn't need to give it anymore help. Now it is with regret, that I go back on schedule with the nebulizer, I feel the need to fight this infection once again. I will admit, the freedom of being away has been such a heavenly relief..
For now.... Back to the grindstone.... Well until the earache retuns again anyway..
Life is a series of things we simply don't want to do... Do them anyway.. It matters ..
Hopefully this blog will be the culmination of all my years attempting to write a book about surviving an organ transplant. I've survived 3 organ transplants & have a pacemaker. Life is GOOD! I am truly BLESSED! Years ago I titled my book "At the end of my rope" for 2 reasons. 1.Physically: Being tethered to oxygen for 20+ years. Hence, the rope. 2. Psychologically: There are times when I literally feel At the end of my rope.
boy, your between a rock and a hard spot...prayers still coming your way, sweet lady...LOVE YA Dora
ReplyDelete